The ethical use of genomic data is guided by several frameworks, including the Belmont Report, which emphasizes respect for persons, beneficence, and justice. The Genetic Information Nondiscrimination Act (GINA) of 2008 protects against discrimination based on genetic information in health insurance and employment. Additionally, the Common Rule regulates the ethical conduct of human subjects research, and the Global Alliance for Genomics and Health (GA4GH) provides frameworks for responsible data sharing. These frameworks ensure that genomic data is used ethically, safeguarding privacy and promoting transparency and consent. Key Takeaway: Ethical frameworks like GINA and GA4GH guide responsible and fair genomic data usage.
What frameworks guide the ethical use of genomic data
Updated 9/5/2025